Rinsho Shinkeigaku (Clinical Neurology)

Symposium 4

Medical Treatment of NANBYO from patients' perspective

Tateo Ito1)

1)Head office, Japan Patients Association

NANBYO policy which has practiced since 1972 has been discussing for making fundamental reform. As a part of a plan to reform, "Total Supports for Persons with Disabilities Act" executed. The target of this act is included with NANBYO patients. Regarding to the enforcement of the act, there are major changes as follows; 1) Regional government has a responsibility to set up the support project for NANBYO patients, 2) Welfare policy will be altered by a change in the definition of disability (the target of welfare for the disabled is not only patients who have fixed disabilities but have changed (e.g. NANBYO), 3) NANBYO patients will be regarded as a target for job assistance under the act. In this abstract, the author raises the fundamental issues as "Society where NANBYO patients can live is equal to that where all people can live", from patient's perspective.
Full Text of this Article in Japanese PDF (2235K)

(CLINICA NEUROL, 53: 1287|1289, 2013)
key words: NANBYO (rare and intractable diseases), NANBYO policy, Total Supports for Persons with Disabilities Act, liver as a patient, working opportunity

(Received: 1-Jun-13)